Comments on: Crohn’s Disease Can Constantly Change Your Life http://www.lightningshock.com/2008/07/21/crohns-disease-can-constantly-change-your-life/ (Were you expecting a witty tagline?) Wed, 01 Feb 2012 19:47:54 +0000 hourly 1 http://wordpress.org/?v=3.0.4 By: Emma Reid http://www.lightningshock.com/2008/07/21/crohns-disease-can-constantly-change-your-life/#comment-3159 Emma Reid Sat, 19 Feb 2011 09:10:21 +0000 http://www.lightningshock.com/?p=77#comment-3159 hey mate good to c some one my age has chrones wel not good but yeh im 21 now and got diagnosed wen i was 18, plz email me any time it be good to get to no eachother n-o-f-x.babe@hotmail.com hey mate good to c some one my age has chrones wel not good but yeh im 21 now and got diagnosed wen i was 18, plz email me any time it be good to get to no eachother n-o-f-x.babe@hotmail.com

]]> By: Emma Reid http://www.lightningshock.com/2008/07/21/crohns-disease-can-constantly-change-your-life/#comment-3158 Emma Reid Sat, 19 Feb 2011 09:08:49 +0000 http://www.lightningshock.com/?p=77#comment-3158 hey guys, it good to read so many things about chrones disease of younger ppl. i was soo sick wen i was 16 and wen i was 18 i got diagnosed with chrones i was on my death bed bout to die i lost so much weight ended up being 35 kilos and i couldnt walk, no one belived me that i was sick they all just thought i was faking it or it was peirod pain, any way im fixed now after being in hospital for a month and few weeks wit a big scar on my tummy but thats life, i would really like some one to email me or sumthing and get to no other ppl that has chrones and lives in brisbane would b great to meet up :D as i feel like a freak coz i dnt no any one that got it :( xx hey guys, it good to read so many things about chrones disease of younger ppl. i was soo sick wen i was 16 and wen i was 18 i got diagnosed with chrones i was on my death bed bout to die i lost so much weight ended up being 35 kilos and i couldnt walk, no one belived me that i was sick they all just thought i was faking it or it was peirod pain, any way im fixed now after being in hospital for a month and few weeks wit a big scar on my tummy but thats life, i would really like some one to email me or sumthing and get to no other ppl that has chrones and lives in brisbane would b great to meet up :D as i feel like a freak coz i dnt no any one that got it :( xx

]]> By: Melanie http://www.lightningshock.com/2008/07/21/crohns-disease-can-constantly-change-your-life/#comment-3142 Melanie Sun, 23 Jan 2011 23:05:59 +0000 http://www.lightningshock.com/?p=77#comment-3142 Wow! That was a lot worse than I had it. I also have Crohn's Disease, and I understand that it's not a fun thing to get. What I find creepy is that I got it on July 4th... I got it when I was eight, and I spent two weeks in the hospital. You seemed to have had a much tougher time with it though. I only got an MRI, a CAT scan, and a colonoscopy and an underanoscopy. I hope you have no problems with your disease in the future! Wow! That was a lot worse than I had it. I also have Crohn’s Disease, and I understand that it’s not a fun thing to get. What I find creepy is that I got it on July 4th… I got it when I was eight, and I spent two weeks in the hospital. You seemed to have had a much tougher time with it though. I only got an MRI, a CAT scan, and a colonoscopy and an underanoscopy. I hope you have no problems with your disease in the future!

]]> By: Ryan http://www.lightningshock.com/2008/07/21/crohns-disease-can-constantly-change-your-life/#comment-3060 Ryan Fri, 13 Aug 2010 09:02:36 +0000 http://www.lightningshock.com/?p=77#comment-3060 Sorry needed some editing I read what happened and I also am someone who has crohn disease. I was diagnosed 5 times and all came up as crohns. My first diagnoses of crohn’s was 4 years ago. I have been through doctor to doctor and they all are amazed on how aggressive and extreme my case is. I’m 22 and have been through many surgeys. Infact just three weeks ago I had surgery and had many complications. When I came out of surgery every thing seemed fine but after three days the inside incision ruptured and I needed a blood transfusion. I was in the hospital for about a week. Well all seemed to go well after that but little did I know after being out of the hospital for three days my staples started to bleed out where i found myself sitting in a puddle of my own blood. I was rushed to the ER were they had found I had developed an extreme case of being jaundiced. The doctors and nurses ran some CT scans and found out inside I had around five or more abscess in my stomach infecting me from the inside where I would have died in the next few days if I didn’t receive an emergency right then and there. When I got out of that surgery I woke with a large bandages on my stomach and in lots of pain. When the nurse came to clean the dressing I saw an open wound similar to your in the lower picture. My wound was lower and closer to my groin area though and a larger hole about 4in deep at the bottom and no more belly button. I was at first devastated when I the wound it started to make my eyes water. I was in the hospital for a little over another week. I can relate to your story alot. Sorry needed some editing
I read what happened and I also am someone who has crohn disease. I was diagnosed 5 times and all came up as crohns. My first diagnoses of crohn’s was 4 years ago. I have been through doctor to doctor and they all are amazed on how aggressive and extreme my case is. I’m 22 and have been through many surgeys. Infact just three weeks ago I had surgery and had many complications. When I came out of surgery every thing seemed fine but after three days the inside incision ruptured and I needed a blood transfusion. I was in the hospital for about a week. Well all seemed to go well after that but little did I know after being out of the hospital for three days my staples started to bleed out where i found myself sitting in a puddle of my own blood. I was rushed to the ER were they had found I had developed an extreme case of being jaundiced. The doctors and nurses ran some CT scans and found out inside I had around five or more abscess in my stomach infecting me from the inside where I would have died in the next few days if I didn’t receive an emergency right then and there. When I got out of that surgery I woke with a large bandages on my stomach and in lots of pain. When the nurse came to clean the dressing I saw an open wound similar to your in the lower picture. My wound was lower and closer to my groin area though and a larger hole about 4in deep at the bottom and no more belly button. I was at first devastated when I the wound it started to make my eyes water. I was in the hospital for a little over another week. I can relate to your story alot.

]]> By: Ryan http://www.lightningshock.com/2008/07/21/crohns-disease-can-constantly-change-your-life/#comment-3059 Ryan Fri, 13 Aug 2010 08:58:06 +0000 http://www.lightningshock.com/?p=77#comment-3059 I read what happened and I also am someone who has crohn disease. I was diagnosed 5 times and all came up as crohns. My first diagnoses of crohn's was 4 years ago. I have been through doctor to doctor and they all are amazed on how aggressive and extreme my case is. I'm 22 and have been through many surgeys. Infact just three weeks ago I had surgery and had many complications. When I came out of surgery every thing seemed fine but after three days the inside incision ruptured and I needed a blood transfusion. I was in the hospital for about a week. Well all seemed to go well after that but little did I know after being out of the hospital for three days my staples started to bleed out where i found myself sitting in a puddle of my own blood. I was ruched to the ER were I developed a extreme case of being jaundiced. They ran some CT scans and found out inside I had five abscess in my stomach infecting me were I would have died in the next few days if I didn't receive an emergency right then and there. When I got out of that surgery I woke with a large bandages on my stomach and in lots of pain. When the nurse came to clean the dressing I saw an open wound similar to your in the lower picture. My wound was lower and closer to my groin area though and a larger hole about 4in deep at the bottom and no more belly button. I was at first devastated when I the wound it started to make my eyes water. I was in the hospital for a little over another week. I can relate to your story alot. I read what happened and I also am someone who has crohn disease. I was diagnosed 5 times and all came up as crohns. My first diagnoses of crohn’s was 4 years ago. I have been through doctor to doctor and they all are amazed on how aggressive and extreme my case is. I’m 22 and have been through many surgeys. Infact just three weeks ago I had surgery and had many complications. When I came out of surgery every thing seemed fine but after three days the inside incision ruptured and I needed a blood transfusion. I was in the hospital for about a week. Well all seemed to go well after that but little did I know after being out of the hospital for three days my staples started to bleed out where i found myself sitting in a puddle of my own blood. I was ruched to the ER were I developed a extreme case of being jaundiced. They ran some CT scans and found out inside I had five abscess in my stomach infecting me were I would have died in the next few days if I didn’t receive an emergency right then and there. When I got out of that surgery I woke with a large bandages on my stomach and in lots of pain. When the nurse came to clean the dressing I saw an open wound similar to your in the lower picture. My wound was lower and closer to my groin area though and a larger hole about 4in deep at the bottom and no more belly button. I was at first devastated when I the wound it started to make my eyes water. I was in the hospital for a little over another week. I can relate to your story alot.

]]> By: michael Hoffner http://www.lightningshock.com/2008/07/21/crohns-disease-can-constantly-change-your-life/#comment-2913 michael Hoffner Tue, 05 Jan 2010 09:08:13 +0000 http://www.lightningshock.com/?p=77#comment-2913 Hi Chelci.... I have been a crohns patient for about 18 years now.. I had a colostomy done in 1999 and then in 2000 had an ilieostomy.. then in 2004 I had my rectum removed because there was some slight crohns activity. So the decision was made to make the ilieostomy permanent. Actually that decision was made before the surgery. went into surgery with the option of reversing it if we could or removing it. Unfortunately the latter happened. But I had 5years to prepare for it :) To tell you the whole story would take up more space here than I can type. However to say that I am in the 3% of patients that have the absolute worst case of crohns. If it can happen it has happened to me. I most recently had to a stomal hernia repair back in sept of '08 and then again this past aug '09.. The amount of scarring I have it really something to be scene.. LOL.. but I have learned over all these years that to keep my sense of humor is the biggest victory of all.. Not that it is easy all the time.. it is not. You have to cry every once in a while just to keep your sanity.. However humor is my best friend. And always will be. My wife still gets mad at me every time I am in the hospital cause of the joking around I do. I can be in extreme pain and still cracking jokes. She gets mad at me because of the fact that I may not be taken seriously at how much pain I am in or how sick I am. But.. I overcome that as well.. I still do however am timid at letting the public see my abs sometimes. It took me a very long time before I even went swimming for the first time again.. 18 years actually. But with the things they have made today, it is covered up very well. I realize that I am a guy and you are a young lady.. I am still young.. 37.. however I can only imagine how hard it is for you to think and feel how you look not only to yourself, but to others. Especially us being in a world of how everything is based on how we look. It is hard sometimes, and sometimes people do look. But to learn to still laugh and even more so to laugh at yourself is such a boost to your emotions and esteem. I was very much worried what my wife ( girlfriend at the time ) would think, but once I told her about it and she saw everything.. she told me.. I am in love you with you.. not your abs.. which I say at the time were pretty good looking.. I just did not have a 6 pack anymore.. after surgery it became a 4 pack.. :) lol.. If you ever need to know more and just want to email with questions, I would be more than happy to chat with ya. ..Michael Hi Chelci…. I have been a crohns patient for about 18 years now.. I had a colostomy done in 1999 and then in 2000 had an ilieostomy.. then in 2004 I had my rectum removed because there was some slight crohns activity. So the decision was made to make the ilieostomy permanent. Actually that decision was made before the surgery. went into surgery with the option of reversing it if we could or removing it. Unfortunately the latter happened. But I had 5years to prepare for it :) To tell you the whole story would take up more space here than I can type. However to say that I am in the 3% of patients that have the absolute worst case of crohns. If it can happen it has happened to me. I most recently had to a stomal hernia repair back in sept of ’08 and then again this past aug ’09.. The amount of scarring I have it really something to be scene.. LOL.. but I have learned over all these years that to keep my sense of humor is the biggest victory of all.. Not that it is easy all the time.. it is not. You have to cry every once in a while just to keep your sanity.. However humor is my best friend. And always will be. My wife still gets mad at me every time I am in the hospital cause of the joking around I do. I can be in extreme pain and still cracking jokes. She gets mad at me because of the fact that I may not be taken seriously at how much pain I am in or how sick I am. But.. I overcome that as well.. I still do however am timid at letting the public see my abs sometimes. It took me a very long time before I even went swimming for the first time again.. 18 years actually. But with the things they have made today, it is covered up very well. I realize that I am a guy and you are a young lady.. I am still young.. 37.. however I can only imagine how hard it is for you to think and feel how you look not only to yourself, but to others. Especially us being in a world of how everything is based on how we look. It is hard sometimes, and sometimes people do look. But to learn to still laugh and even more so to laugh at yourself is such a boost to your emotions and esteem. I was very much worried what my wife ( girlfriend at the time ) would think, but once I told her about it and she saw everything.. she told me.. I am in love you with you.. not your abs.. which I say at the time were pretty good looking.. I just did not have a 6 pack anymore.. after surgery it became a 4 pack.. :) lol.. If you ever need to know more and just want to email with questions, I would be more than happy to chat with ya. ..Michael

]]> By: Roberto http://www.lightningshock.com/2008/07/21/crohns-disease-can-constantly-change-your-life/#comment-2896 Roberto Mon, 07 Dec 2009 13:27:44 +0000 http://www.lightningshock.com/?p=77#comment-2896 I don't understand when you say "vac pack." Do mean a pump system for drainage of your of the open area on your abdomen? Did have to use the "vac pack" in hospital? Why didn't the E.R. clue into you having a large cyst? Sounds like a lot of pain and suffering. I hope you get back to normal soon. All the Best. I don’t understand when you say “vac pack.” Do mean a pump system for drainage of your of the open area on your abdomen? Did have to use the “vac pack” in hospital? Why didn’t the E.R. clue into you having a large cyst? Sounds like a lot of pain and suffering. I hope you get back to normal soon.

All the Best.

]]> By: James Lewitzke http://www.lightningshock.com/2008/07/21/crohns-disease-can-constantly-change-your-life/#comment-1916 James Lewitzke Wed, 18 Feb 2009 01:23:38 +0000 http://www.lightningshock.com/?p=77#comment-1916 What do you wish to know? Commenting here is easier, faster, and more efficient. However, if you must keep the talk private, just check out my feedback page for email instructions. What do you wish to know?

Commenting here is easier, faster, and more efficient. However, if you must keep the talk private, just check out my feedback page for email instructions.

]]> By: Chelci Squires http://www.lightningshock.com/2008/07/21/crohns-disease-can-constantly-change-your-life/#comment-1853 Chelci Squires Mon, 16 Feb 2009 03:06:15 +0000 http://www.lightningshock.com/?p=77#comment-1853 i was diagnosed with crohns 2 years ago and i also had the surgery to removed an abscess which spanned from my groin to above my kidneys, i was fitted with an ileostomy 2 years ago after 3months in hospital, and have had the procedure reversed in june of 2008. from looking at your photos, i can see you have the same incision as i do and once you have your ileostomy reversed will also have the same scars from the reversal. the reason i say this is because im a 18 year old girl, who is really affected by these scars, and was woundering if you would open to talk via email. i have never found anyone who has been through the same ordeal as we have, and i was hoping that it could help. Many Thanks Chelci i was diagnosed with crohns 2 years ago and i also had the surgery to removed an abscess which spanned from my groin to above my kidneys, i was fitted with an ileostomy 2 years ago after 3months in hospital, and have had the procedure reversed in june of 2008.

from looking at your photos, i can see you have the same incision as i do and once you have your ileostomy reversed will also have the same scars from the reversal. the reason i say this is because im a 18 year old girl, who is really affected by these scars, and was woundering if you would open to talk via email. i have never found anyone who has been through the same ordeal as we have, and i was hoping that it could help.

Many Thanks

Chelci

]]> By: Crohn’s Disease Can Constantly Change Your Life Part II http://www.lightningshock.com/2008/07/21/crohns-disease-can-constantly-change-your-life/#comment-1405 Crohn’s Disease Can Constantly Change Your Life Part II Wed, 24 Dec 2008 22:58:07 +0000 http://www.lightningshock.com/?p=77#comment-1405 [...] I finally got my Intestinal Reattachment Surgery last Wednesday, whose condition I mentioned earlier in the [...] [...] I finally got my Intestinal Reattachment Surgery last Wednesday, whose condition I mentioned earlier in the [...]

]]>